Support Women’s Health: Early Lipedema Recognition Starts Here

The ILEAD Health Risk Assessment Form is designed to help healthcare providers screen for Lipedema risk factors and associated comorbidities in patients. This essential tool allows for a comprehensive evaluation of a patient's health and history, enabling early identification of potential Lipedema signs and complications. Key features include:

Risk Factor Checklist: A detailed list of symptoms and health indicators associated with Lipedema, including family history, prior diagnoses, and signs like swelling, pain, and bruising, to assess risk.

Comorbidity Screening: Identifies common conditions that often coexist with Lipedema, such as POTS, EDS, obesity, and others, helping to guide holistic treatment approaches.

Patient History Overview: A section for patients to document past medical conditions, treatments, and symptoms, providing critical context for a thorough clinical evaluation.

This form is an integral part of the ILEAD Toolkit, empowering providers with the information needed to identify Lipedema and its related comorbidities early, ultimately leading to more effective care and improved patient outcomes.

The back of the ILEAD Health Risk Assessment Form is a comprehensive tool designed to provide a thorough overview of a patient's health status and risk factors related to Lipedema. This section includes:

Biometric Measurements: Track key data such as Height, Weight Ratio (HWR) and Body Mass Index (BMI) to assess physical health and identify risk factors.

Physical Function Assessment: Evaluate mobility, endurance, and limitations that may indicate signs of Lipedema or related comorbidities.

Nutrition & Mental Well-Being: Record information on a patient's nutritional habits and mental health to provide a holistic view of their overall well-being.

Body Map Diagram: A visual tool for patients to mark symptoms such as bruising, pain, swelling, and nodules, enabling effective tracking and early identification of Lipedema-related issues.

This back form is part of the ILEAD Toolkit, a non-diagnostic screening tool designed to support healthcare providers in identifying early signs of Lipedema, ensuring comprehensive care, and improving patient outcomes.

The Provider Clinical Indicator Guide is a one-page resource designed to quickly familiarize healthcare providers with Lipedema, its clinical features, and key diagnostic considerations. This guide includes:

What is Lipedema? A concise overview of the condition, highlighting its impact on women's health, often misunderstood as simple obesity.

Clinical Features: A summary of the primary symptoms and characteristics of Lipedema, including disproportionate fat distribution, pain, swelling, and the formation of nodules.

Lipedema Staging: A visual depiction of the stages of Lipedema, helping providers recognize the progression of the condition for more accurate diagnosis and intervention.

Differential Diagnosis: Key differentiators between Lipedema and other conditions like lymphedema, obesity, and cellulite, ensuring healthcare providers can make well-informed diagnostic decisions.

This guide serves as an essential resource for healthcare professionals to quickly recognize Lipedema, its stages, and the necessary steps for referral and treatment, ensuring better patient care and outcomes.

The Physician Assessment Form/Checklist is an evidence-based tool designed to help healthcare providers document and assess Lipedema in patients. This form supports accurate and thorough evaluations, ensuring key clinical features are identified and documented systematically. It includes:

Assessment Checklist: A comprehensive list of Lipedema’s clinical indicators, including disproportionate fat distribution, pain, swelling, and other characteristic symptoms, for easy reference during patient consultations.

Evidence-Based Guidelines: The form includes citations from the latest research and clinical literature to support each aspect of the assessment process, ensuring a solid foundation for diagnosis.

Documentation Sections: Structured areas for providers to record findings, track progression, and plan for referrals or further diagnostic testing.

The back of the Physician Assessment Form is designed to provide healthcare providers with a comprehensive guide for next steps after assessing a patient for Lipedema. This part of the form focuses on referrals and follow-up care, ensuring patients receive the appropriate multidisciplinary support. It includes:

Referral Checklist: A list of specialists and services to consider referring the patient to, including Certified Lymphedema Therapists (CLT), mental health professionals, nutritionists, and vascular surgeons, among others.

Patient Notes Section: A space for physicians to document observations, concerns, or specific patient needs that may require further follow-up or customized care.

The Body Symptom Map is a visual tracking tool designed to help patients document their Lipedema symptoms over time. Featuring a front and rear illustration of a female body, this printable tool allows individuals to track and visualize key symptoms, including pain, swelling, and nodules across 30 days. The map helps patients pinpoint symptom locations, providing valuable data for their healthcare providers during consultations. Key features include:

Visual Tracker: A clear body outline where patients can mark the locations of pain, swelling, and nodules, offering a visual record of their symptoms.

Symptom Documentation: Allows patients to record and monitor symptom severity over a month, helping to identify patterns or changes in their condition.

Printable Format: Designed for easy printing, this tool allows patients to use it in conjunction with medical visits for effective communication with healthcare providers.

This body map is an invaluable tool for patients looking to understand and track their condition, ensuring healthcare providers receive accurate and actionable information for diagnosis and care.

The Body Map Symptom Tracker Key provides clear instructions for effectively using the Body Symptom Map. It includes a comprehensive guide on how to mark and track symptoms like pain, swelling, and nodules, ensuring consistent and accurate documentation. Key features include:

Symptom Tracking Instructions: Step-by-step guidance on how to use the symptom map to record and monitor symptoms effectively over 30 days.

Visual Key: A color-coded system to help patients mark different symptom types on the body map, such as pain (e.g., red), swelling (e.g., blue), and nodules (e.g., purple).

Easy-to-Understand Guide: A simplified set of instructions that ensures patients can easily track their symptoms without confusion, empowering them to be proactive in managing their condition.

This tracker key is essential for providing clarity and structure to the symptom tracking process, ensuring that patients document their symptoms in a way that is meaningful and useful for their healthcare providers.

The Provider Billing and Optimization Guide is a comprehensive toolkit designed to assist healthcare providers in navigating the complexities of billing for Lipedema-related care. Since there is no ICD-10 code for Lipedema, proper documentation is crucial to ensure accurate reimbursement and recognition for Lipedema screening. This guide includes valuable tools and resources to help healthcare providers implement best practices for billing in various settings, such as vascular, primary care, GYN, obesity clinics, and Certified Lymphedema Therapists (CLTs). Key features include:

Comprehensive Billing Support: Practical tools and tips for coding and billing Lipedema-related screenings and treatments without an ICD-10 code.

Best Practices for Documentation: Backed by the US Preventive Services Task Force (USPSTF) obesity guidelines, this guide helps providers document screenings and services accurately.

Guidelines for Different Specialties: Specific instructions for providers in vascular, primary care, GYN, obesity clinics, and CLTs to ensure consistent, accurate documentation.

Education for Providers: Helps providers understand the evolving landscape of Lipedema diagnosis and care, improving billing and reimbursement opportunities.

The front of the FAQ sheet provides a concise overview of frequently asked questions related to Lipedema. It includes essential information for healthcare providers to better understand Lipedema, its signs and symptoms, as well as guidance on diagnosis, treatment, and billing. This resource helps providers address common inquiries and ensures that they are equipped to support patients effectively.

Back page of Lipedema FAQ sheet for healthcare providers, featuring key questions on diagnosis, treatment, and billing for Lipedema care.

his image shows a doctor at a computer, with a focus on visually displaying the "1 in 9 Lipedema Challenge" badge. This badge can be used by healthcare providers to showcase their commitment to Lipedema awareness. It is part of the Discover Toolkit and can be proudly featured on their website, social media, or other communications to signal leadership in Lipedema awareness and recognition. The badge serves as a symbol of dedication to identifying and supporting women with Lipedema.

This image showcases a Certificate of Appreciation framed and ready for display. Healthcare providers who purchase the Discover Toolkit will receive this formal certificate to acknowledge their commitment to Lipedema awareness and early recognition. It is designed for office display, highlighting the provider's dedication to improving women's health by supporting early Lipedema detection and care.

This image displays the Lipedema 1 in 9 Challenge flyer, featuring a prominent icon and the key message that Lipedema affects 1 in 9 women. The flyer highlights the contents of the toolkit, providing a snapshot of the essential resources available to healthcare providers for early Lipedema recognition and support. It also includes a QR code for easy access to the website, where providers can learn more and get their toolkit.

This image shows the cover of the Lipedema 1 in 9 Challenge electronic binder, which visually represents the population of women icons. One icon is highlighted in dark pink with a magnifying glass, symbolizing the search for the 1 in 9 women affected by Lipedema. The electronic binder contains all the documents within the toolkit, organized with a table of contents for easy navigation, helping healthcare providers identify and support women with Lipedema.