Be the Provider Who Recognizes Lipedema Early. 1 in 9 women may be living with undiagnosed Lipedema.

Lipedema affects an estimated 1 in 9 women, yet it remains widely unrecognized in clinical practice. Early identification can reduce unnecessary pain, disability, and health system costs. You have the power to shift that trajectory.

Start with the tools. Lead with evidence. Advance care equity.

Step 1: Get the Free Quick Start Guide

A time-saving, evidence-based overview designed for busy healthcare providers.

Includes:

  • Key clinical indicators to recognize Lipedema

  • Differentiation guidance (Lipedema vs. obesity, lymphedema, etc.)

  • Language for discussing findings with patients (Stages/Types of Lipedema).

Diagnostic clues often missed in routine care.

Too many women are dismissed, misdiagnosed, or blamed for symptoms beyond their control. Lipedema is not a rare disease—it’s a rarely recognized one.

The gaps are clear:

  • Women wait years—or decades—for answers

  • Health plans often misclassify the condition

  • Documentation doesn’t match clinical need

You can change that by recognizing the signs earlier and documenting them accurately. The Lipedema Health Navigator™ program helps you do both with efficiency and clinical rigor.

Why It’s Missed and Why It Matters

Your QI-aligned resource for improving Lipedema recognition and care delivery.

What’s Inside:

  • iLEAD Assessment Form: Structured, nurse-developed tool to guide recognition

  • Clinical Indicator Guide: Red flags and decision points for early-stage identification

  • Patient Communication Guide: Patient support tool to enhance communication of symptoms and guide discussion.

  • Body Map & 30-Day Tracker: Patient-facing tools to document symptom progression

  • Billing & Coverage Support Guide: Tips for navigating payer documentation and coverage discussions

  • Physician Checklist: Fast-reference aid for clinical use, referral pathway (checklist).

Everything is designed to fit your workflow and not compete with it.

Access the Full Provider Toolkit

Badge for "Lipedema: The 1 in 9 Challenge," featuring pink silhouettes of women, a magnifying glass highlighting one, and the text "Leader in Lipedema Awareness."

Closing the Gap: A Clinical Path Forward

We’ve outlined a care pathway to help providers recognize, document, and support patients from the first signs to long-term management.

Recognition → Documentation → Referral → Coverage Support

This pathway is built on QI principles improving patient outcomes while reducing friction in care delivery. Use it to track the patient experience and elevate your team’s clinical performance.

Join the Lipedema Health Navigator™ Network (LHN Directory)

A Trusted Ecosystem Connecting Lipedema Providers with the Patients Who Need Them Most